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Sociological and cultural aspects of Tay–Sachs disease
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Sociological and cultural aspects of Tay–Sachs disease : ウィキペディア英語版
Sociological and cultural aspects of Tay–Sachs disease

Advances in knowledge about Tay–Sachs disease have stimulated debate about the proper scope of genetic testing, and the correctness of having diseases characterised as specific to one ethnicity. Jewish communities have been in the forefront of genetic screening and counselling for the disorder.
== Impact on Jewish communities ==

Ashkenazi Jews have been screened as Tay–Sachs carriers since carrier testing began in 1971. Jewish communities embraced the cause of genetic screening from the 1970s on, and Israel became the first country to offer free genetic screening and counseling for Tay–Sachs disease and other diseases, leading to discussion about the proper scope of genetic testing.
Much awareness of ''Ashkenazi Jews'' as an ethnic group stems from genetic studies of disease. Some regard these studies as exhibiting ascertainment bias which created an impression that Jews are more susceptible to genetic disease than other populations.〔 They cite BRCA1 and BRCA2 mutations becoming identified as "Jewish mutations," despite there being mutations at these loci that are found in all populations. Sheila Rothman and Sherry Brandt-Rauf write: "Our findings cast doubt on the accuracy and desirability of linking ethnic groups to genetic disease. Such linkages exaggerate genetic differences among ethnic groups and lead to unequal access to testing and therapy."〔

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